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February 29, 2024
10:00 AM EST
Legislative Proposals to Support Patients with Rare Diseases
House Energy and Commerce Committee
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WITNESSES:
Dr. Terence Flotte, MD
Provost and Dean of UMass Chan Medical School, Vice President of American Society of Gene and Cell Therapy (ASGCT)
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Dr. Alexander Bassuk, MD, PhD
Physician-in-Chief, University of Iowa Stead Family Children's Hospital; Chair and Professor, Stead Family Department of Pediatrics
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Dr. Aaron Kesselheim, MD, JD, MPH
Professor of Medicine, Harvard Medical School; Director, Program On Regulation, Therapeutics, And Law (PORTAL) at Brigham and Women's Hospital
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Dr. Jeromie Ballreich, PhD
Associate Research Professor, Johns Hopkins Bloomberg School of Public Health
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Dr. Alice Chen, PhD
Senior Fellow, USC Schaeffer Center for Health Policy and Economics; Associate Professor and Vice Dean for Research, USC Sol Price School of Public Policy
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Ms. Khrystal Davis, JD
Founding President, Texas Rare Alliance
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https://www.congress.gov/event/118th-congress/house-event/116902
https://energycommerce.house.gov/calendars?start=2024-02-23&end=2024-03-01
https://youtube.com/watch?v=yrV88SvUfic
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Hearing on Supporting Patients with Rare Diseases
Medical professionals and public health researchers discuss ways to support patients with rare diseases during a hearing before the House Energy and Commerce Subcommittee on Health.
https://www.c-span.org/video/?533929-1/hearing-supporting-patients-rare-diseases
February 29, 2024
10:00 AM EST
Markup of Various Measures
House Financial Services Committee
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H.R. 802 - Respect State Housing Laws Act
https://www.congress.gov/bill/118th-congress/house-bill/802
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H.R. 7156 - the "Combating Money Laundering in Cyber Crime Act of 2024"
https://www.congress.gov/bill/118th-congress/house-bill/7156
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H.R. 7159 - Pacific Partnership Act
https://www.congress.gov/bill/118th-congress/house-bill/7159
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H.R. 7280 - the "HUD Transparency Act of 2024"
https://www.congress.gov/bill/118th-congress/house-bill/7280
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H.R. 6864 - the "HUD Accountability Act of 2023"
https://www.congress.gov/bill/118th-congress/house-bill/6864
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H.R. 7437 - the "Fostering the Use of Technology to Uphold Regulatory Effectiveness (FUTURE) in Supervision Act"
https://www.congress.gov/bill/118th-congress/house-bill/7437
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H.R. 7440 - the "Financial Services Innovation Act of 2024"
https://www.congress.gov/bill/118th-congress/house-bill/7440
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H.R. 4206 - the "Bank Safety Act of 2023"
https://www.congress.gov/bill/118th-congress/house-bill/4206
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H.R. 4116 - the "Systemic Risk Authority Transparency Act"
https://www.congress.gov/bill/118th-congress/house-bill/4116
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H.R. 5535 - the "Insurance Data Protection Act"
https://www.congress.gov/bill/118th-congress/house-bill/5535
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H.R. 7428 - Earned Wage Access Consumer Protection Act
https://www.congress.gov/bill/118th-congress/house-bill/7428
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H.J.Res. 109 - Providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Securities and Exchange Commission relating to "Staff Accounting Bulletin No. 121"
https://www.congress.gov/bill/118th-congress/house-joint-resolution/109
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H.R. ___, the "Wildfire Insurance Coverage Study Act of 2023."
https://docs.house.gov/meetings/BA/BA00/20240229/116910/BILLS-118HR____ih.pdf
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https://www.congress.gov/event/118th-congress/house-event/116910
https://www.congress.gov/118/meeting/house/116910/documents/HMKP-118-BA00-20240229-SD002.pdf
https://financialservices.house.gov/calendar/eventsingle.aspx?EventID=409153
https://youtube.com/watch?v=ipBbJmZDsZs
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